Traveling with SBS brings a unique set of challenges. Use the following information to help prepare and make your upcoming trip as comfortable as possible."

Traveling with Short Bowel Syndrome (SBS)"

TAKE CONTROL
OF YOUR TRIP

Norma, a patient
living with SBS

Traveling with Short Bowel Syndrome brings its own unique set of challenges, but there are ways you can prepare for your trip and make it more comfortable.



Traveling with SBS

TALK TO YOUR DOCTOR BEFORE YOU GO

Have a frank discussion with your healthcare team about what you can expect during your trip. Ask what challenges you’ll face and how you can reach them in case of an emergency or trouble with your equipment. Talk through what elements of travel you can actively control and what you can plan ahead of time to make everything go as smoothly as possible.

Completing The Oley Foundation’s Packet for Travel and Hospital Admissions can help you prepare, as well. To access this resource, type "Packet for Travel and Hospital Admissions” into the search bar on the organization’s home page.

Norma, a patient living with SBS, describes what she does to prepare for travel in the video below.

ARRANGE FOR SUPPLIES IN ADVANCE

Traveling with medication complicates things, so, if you can, get everything you'll need for your trip ready ahead of time. Consider how to transport and store your temperature-sensitive medications and make a plan to have everything you need accessible throughout your trip.

If your doctor says it's OK, consider shipping your supplies straight to your destination. When you do this, you don't have to travel with them in hand, which can simplify your time at the airport and make getting there less of a hassle. But before you confirm delivery or actually make a hotel reservation, discuss your situation with the hotel. You’ll probably need to talk with the manager of the receiving or security department about your delivery.

Confirm your delivery with the hotel on the day your supplies are supposed to arrive. In case something unexpected happens, it's a good idea to have a backup plan in place so you have access to the supplies you need at all times.

For additional tips on how to travel with an ostomy, visit the United Ostomy Association of America. Enter “travel” into their home page search bar to access helpful ostomy travel information and resources.

REMEMBER TO ALWAYS PACK EXTRA MEDICAL SUPPLIES IN CASE OF LOSS OR DAMAGE.

Keep your medications at the proper temperature

When your medication is temperature-sensitive, consider asking your doctor or pharmacist if the following tips would work well for your medication when traveling.

  • Use an insulated medicine travel bag or cooler, cold packs and ice.
  • Recool your supplies as often as you can.
  • When you make a hotel reservation, confirm that there's a refrigerator in your room or an accessible space in the hotel's kitchen refrigerator, if needed.
  • Label and pack temperature-sensitive items separately.
  • Bring the components of your solution in separate containers that won’t require refrigeration until the contents are mixed. Note: Though this can be more convenient for storage, remember that you will then have to mix these solutions yourself.
Going on vacation with short bowel syndrome (SBS)

Kevin, a patient living with SBS

PREPARE FOR AIRPORT SECURITY

If flying, visit the Transportation Security Administration (TSA) site and review their Travelers with Disabilities and Medical Conditions procedures. This will offer specific information about traveling with medicine or equipment.

If you have questions regarding airport security or traveling with a PICC line, call the TSA Cares helpline at (855) 787-2227 at least 72 hours in advance.



CREATE A PLAN FOR EMERGENCIES

Always have an emergency plan. Know where the closest medical center is, the local contacts for medical supplies and the names of medical professionals in the area.

Prior to the trip, be sure to ask your doctor what steps you should take if you experience medical issues while traveling.



LEARN FROM OTHER TRAVELERS

Connect with SBS travelers, including those who travel abroad. Visit the Oley Foundation’s website for additional travel tips.

Sign up for EDUCATIONAL EMAILS and a complimentary book, A Patient's Guide to Managing a Short Bowel.