SBS creates challenges for many, but you’re not alone
The following videos reflect personal stories. Listen to those who have SBS and learn how they make the best of their situation. Everyone's experience is different.
Living life with SBS, a rare condition
"I never thought I could experience the life that I’ve enjoyed."
- Kevin, SBS Patient
Adjusting after diagnosis of SBS
"No matter where I've lived, I've always had a garden. And having SBS is definitely not going to stop me from getting my hands in the dirt."
- cody, SBS Patient
Eating, sleeping and TPN
"One conscious thing you’ve gotta do is watch your eating so you’re not overloading your system."
- Jennifer, SBS Patient
Friends, dating and SBS
"It was different adjusting to everything that you're used to. It's the little things that you don't think of when something major like that happens that affects every little part of your daily routine that you're so used to."
- Jameson, SBS Patient
You're not alone
"It's astonishing how much it helps to know that there are other people doing it [24-hour TPN] too … and if you've got a problem or something, you can call someone who knows exactly what you’re talking about."
- Elizabeth, SBS Patient